Statements (28)
| Predicate | Object |
|---|---|
| gptkbp:instanceOf |
gptkb:nonprofit_organization
|
| gptkbp:abbreviation |
gptkb:EURORDIS
|
| gptkbp:activity |
advocacy
policy development awareness raising support for research |
| gptkbp:collaboratesWith |
gptkb:Orphanet
gptkb:European_Parliament gptkb:European_Medicines_Agency |
| gptkbp:focus |
rare diseases
|
| gptkbp:founded |
1997
|
| gptkbp:fullName |
gptkb:EURORDIS-Rare_Diseases_Europe
|
| gptkbp:headquartersLocation |
gptkb:Paris,_France
|
| https://www.w3.org/2000/01/rdf-schema#label |
EURORDIS
|
| gptkbp:language |
gptkb:French
gptkb:Spanish English |
| gptkbp:membership |
over 1000 patient organizations
|
| gptkbp:mission |
improve the quality of life of people living with rare diseases in Europe
|
| gptkbp:organizes |
gptkb:Rare_Disease_Day
|
| gptkbp:president |
gptkb:Yann_Le_Cam
|
| gptkbp:regionServed |
gptkb:Europe
|
| gptkbp:status |
gptkb:nonprofit_organization
|
| gptkbp:type |
patient-driven alliance
|
| gptkbp:website |
https://www.eurordis.org/
|
| gptkbp:bfsParent |
gptkb:Black_Pearl_Award
gptkb:SMA_Europe |
| gptkbp:bfsLayer |
7
|