EURORDIS-Rare Diseases Europe

URI: https://gptkb.org/entity/EURORDIS-Rare_Diseases_Europe
GPTKB entity
Statements (29)
Predicate Object
gptkbp:instanceOf gptkb:nonprofit_organization
patient advocacy group
gptkbp:abbreviation gptkb:EURORDIS
gptkbp:advocatesFor patient rights
rare disease policy
access to treatments
gptkbp:affiliatedWith gptkb:European_Reference_Networks
gptkbp:collaboratesWith gptkb:European_Union_institutions
national governments
pharmaceutical industry
research organizations
other patient organizations
gptkbp:focus patient advocacy
rare diseases
gptkbp:founded 1997
gptkbp:headquarters_location gptkb:Paris,_France
https://www.w3.org/2000/01/rdf-schema#label EURORDIS-Rare Diseases Europe
gptkbp:languageOfWork gptkb:French
English
other European languages
gptkbp:legalStatus gptkb:nonprofit_organization
gptkbp:membership over 1000 patient organizations
gptkbp:mission improve the quality of life of people living with rare diseases in Europe
gptkbp:organizes gptkb:Rare_Disease_Day
gptkbp:regionServed gptkb:Europe
gptkbp:supports rare disease research
gptkbp:website https://www.eurordis.org/
gptkbp:bfsParent gptkb:EURORDIS
gptkbp:bfsLayer 8