SMA Europe

GPTKB entity

Statements (70)
Predicate Object
gptkbp:instance_of gptkb:organization
gptkbp:advocates_for patient rights
research funding
inclusive policies
equitable access to care
access to therapies
gptkbp:aims_to improve quality of life for SMA patients
gptkbp:collaborates_with gptkb:healthcare_professionals
government agencies
pharmaceutical companies
gptkbp:conducts gptkb:educational_campaigns
workshops for healthcare professionals
surveys on patient needs
gptkbp:connects families with resources
SMA communities across Europe
patients with clinical trials
gptkbp:develops educational workshops
partnerships with NGOs
guidelines for best practices.
strategies for treatment access
gptkbp:distributes gptkb:educational_materials
gptkbp:encourages community involvement
genetic testing
gptkbp:engages_in policy advocacy
public awareness campaigns
social media outreach
fundraising activities
collaborative research projects
gptkbp:facilitates networking opportunities
patient registries
peer support networks
access to clinical trials
gptkbp:has_a_focus_on gptkb:muscular_dystrophy
gptkbp:hosts webinars
conferences and workshops
https://www.w3.org/2000/01/rdf-schema#label SMA Europe
gptkbp:issues annual reports
newsletters
position statements
policy briefs
gptkbp:offers support groups
online resources
gptkbp:participates_in international collaborations
advocacy days
gptkbp:promotes early diagnosis
collaborative care models
best practices in care
awareness of SMA
self-advocacy among patients
gptkbp:provides emotional support
resources for families
training for healthcare providers
information on treatment options
information on clinical guidelines
legal advice for patients
guidance for caregivers
gptkbp:raises_funds_for funds for research
gptkbp:supports policy changes
clinical trials
research initiatives
family-centered care
advocacy training for patients
patient empowerment initiatives
transition programs for young adults
gptkbp:works_with local organizations
research institutions
patient organizations
international SMA organizations
gptkbp:bfsParent gptkb:muscular_dystrophy
gptkbp:bfsLayer 5