Statements (70)
Predicate | Object |
---|---|
gptkbp:instance_of |
gptkb:organization
|
gptkbp:advocates_for |
patient rights
research funding inclusive policies equitable access to care access to therapies |
gptkbp:aims_to |
improve quality of life for SMA patients
|
gptkbp:collaborates_with |
gptkb:healthcare_professionals
government agencies pharmaceutical companies |
gptkbp:conducts |
gptkb:educational_campaigns
workshops for healthcare professionals surveys on patient needs |
gptkbp:connects |
families with resources
SMA communities across Europe patients with clinical trials |
gptkbp:develops |
educational workshops
partnerships with NGOs guidelines for best practices. strategies for treatment access |
gptkbp:distributes |
gptkb:educational_materials
|
gptkbp:encourages |
community involvement
genetic testing |
gptkbp:engages_in |
policy advocacy
public awareness campaigns social media outreach fundraising activities collaborative research projects |
gptkbp:facilitates |
networking opportunities
patient registries peer support networks access to clinical trials |
gptkbp:has_a_focus_on |
gptkb:muscular_dystrophy
|
gptkbp:hosts |
webinars
conferences and workshops |
https://www.w3.org/2000/01/rdf-schema#label |
SMA Europe
|
gptkbp:issues |
annual reports
newsletters position statements policy briefs |
gptkbp:offers |
support groups
online resources |
gptkbp:participates_in |
international collaborations
advocacy days |
gptkbp:promotes |
early diagnosis
collaborative care models best practices in care awareness of SMA self-advocacy among patients |
gptkbp:provides |
emotional support
resources for families training for healthcare providers information on treatment options information on clinical guidelines legal advice for patients guidance for caregivers |
gptkbp:raises_funds_for |
funds for research
|
gptkbp:supports |
policy changes
clinical trials research initiatives family-centered care advocacy training for patients patient empowerment initiatives transition programs for young adults |
gptkbp:works_with |
local organizations
research institutions patient organizations international SMA organizations |
gptkbp:bfsParent |
gptkb:muscular_dystrophy
|
gptkbp:bfsLayer |
5
|