World Federation of Hemophilia
GPTKB entity
Properties (59)
| Predicate | Object |
|---|---|
| gptkbp:instanceOf |
gptkb:non-profit_organization
|
| gptkbp:advocatesFor |
access to treatment
improved healthcare policies |
| gptkbp:aimsTo |
empower patients and families
improve quality of life for patients reduce treatment disparities increase awareness of bleeding disorders |
| gptkbp:annualEvent |
gptkb:World_Hemophilia_Day
|
| gptkbp:collaborates_with |
gptkb:World_Health_Organization
|
| gptkbp:conducts |
research initiatives
surveys on patient needs |
| gptkbp:encourages |
community engagement
research collaboration patient participation |
| gptkbp:focus |
education
research advocacy treatment |
| gptkbp:founded |
1963
|
| gptkbp:has_a |
experts_in_hemophilia
|
| gptkbp:has_a_focus_on |
patient education
sustainability mental health support youth engagement advocacy training |
| gptkbp:has_partnerships_with |
pharmaceutical companies
|
| gptkbp:hasPrograms |
2021-2025
young leaders |
| gptkbp:headquarters |
gptkb:Montreal,_Canada
|
| gptkbp:hosts |
international congresses
|
| https://www.w3.org/2000/01/rdf-schema#label |
World Federation of Hemophilia
|
| gptkbp:is_a_member_of |
gptkb:International_Society_on_Thrombosis_and_Haemostasis
gptkb:Global_Alliance_for_Blood_Safety |
| gptkbp:is_a_resource_for |
families
patients healthcare_professionals |
| gptkbp:is_governed_by |
Board_of_Directors
|
| gptkbp:is_involved_in |
social media campaigns
clinical trials policy advocacy global health initiatives |
| gptkbp:is_recognized_for |
international health organizations
|
| gptkbp:is_supported_by |
grants
donations |
| gptkbp:membership |
over 130 member organizations
|
| gptkbp:mission |
improve_the_lives_of_people_with_hemophilia_and_bleeding_disorders
|
| gptkbp:offers |
educational programs
training workshops webinars |
| gptkbp:promotes |
clinical guidelines
global_awareness_of_hemophilia |
| gptkbp:provides |
online resources
grants for research emergency response support |
| gptkbp:publications |
World_Hemophilia_Report
|
| gptkbp:supports |
patient registries
national_hemophilia_organizations |
| gptkbp:vision |
a world without bleeds
optimal care for all people with bleeding disorders |