Prader-Willi Syndrome Association
GPTKB entity
Statements (48)
| Predicate | Object |
|---|---|
| gptkbp:instanceOf |
gptkb:non-profit_organization
|
| gptkbp:collaboratesWith |
medical professionals
|
| gptkbp:conducts |
community needs
treatment effectiveness family experiences |
| gptkbp:focusesOn |
gptkb:Prader-Willi_Syndrome
|
| gptkbp:foundedIn |
1990
|
| gptkbp:hasAnnualEvents |
Research Symposium
Awareness Day Family Conference |
| gptkbp:hasHistoricalSignificance |
gptkb:United_States
|
| gptkbp:hasMember |
families and caregivers
families seeking education individuals_with_Prader-Willi_Syndrome |
| gptkbp:hasPartnershipsWith |
other advocacy groups
research institutions healthcare_providers |
| gptkbp:hasSocialMediaPresence |
Facebook
|
| gptkbp:hasWebsite |
www.pwsausa.org
|
| gptkbp:hostsEvents |
annual conferences
|
| https://www.w3.org/2000/01/rdf-schema#label |
Prader-Willi Syndrome Association
|
| gptkbp:isInvolvedIn |
community outreach
fundraising events policy advocacy research funding |
| gptkbp:isRecognizedBy |
gptkb:National_Organization_for_Rare_Disorders
|
| gptkbp:isSupportedBy |
grants
donations volunteers |
| gptkbp:offersDegree |
family support
research updates Prader-Willi_Syndrome_management |
| gptkbp:providesInformationOn |
genetic testing
dietary management behavioral strategies treatment options |
| gptkbp:providesResourcesFor |
support groups
educational materials advocacy services |
| gptkbp:providesSupportFor |
families_of_individuals_with_Prader-Willi_Syndrome
individuals_with_Prader-Willi_Syndrome |
| gptkbp:providesTrainingFor |
educators
healthcare_professionals caregivers |
| gptkbp:publications |
quarterly newsletters
|
| gptkbp:raisesAwarenessAbout |
gptkb:Prader-Willi_Syndrome
|