National Ehlers-Danlos Syndrome Association
GPTKB entity
Statements (55)
| Predicate | Object |
|---|---|
| gptkbp:instance_of |
gptkb:non-profit_organization
|
| gptkbp:bfsLayer |
3
|
| gptkbp:bfsParent |
gptkb:computer
|
| gptkbp:advocates_for |
patients' rights
|
| gptkbp:charity_work |
research on Ehlers-Danlos syndrome
|
| gptkbp:collaborated_with |
universities
|
| gptkbp:collaborates_with |
gptkb:hospital
other EDS organizations |
| gptkbp:conducts |
educational workshops
surveys on patient experiences |
| gptkbp:distributes |
newsletters
|
| gptkbp:engages_in |
gptkb:public_outreach
policy advocacy |
| gptkbp:focuses_on |
gptkb:computer
|
| gptkbp:founded |
gptkb:1997
|
| gptkbp:has_events |
awareness campaigns
|
| gptkbp:has_goal |
improving patient care
|
| gptkbp:has_history |
established in 1997
|
| gptkbp:has_impact_on |
community awareness
|
| gptkbp:has_location |
gptkb:United_States
|
| gptkbp:has_member |
individuals and families
patients and families |
| gptkbp:has_part |
local support groups
|
| gptkbp:has_programs |
youth engagement
|
| gptkbp:has_social_media |
gptkb:Instagram
gptkb:Twitter_account |
| gptkbp:has_website |
www.ehlers-danlos.com
|
| gptkbp:hosts |
annual conferences
patient forums |
| https://www.w3.org/2000/01/rdf-schema#label |
National Ehlers-Danlos Syndrome Association
|
| gptkbp:issues |
grants for research
|
| gptkbp:leadership |
gptkb:Film_Director
|
| gptkbp:offers |
gptkb:Educational_Institution
mentorship programs webinars virtual events patient education materials online support groups scholarships for education telehealth resources |
| gptkbp:participates_in |
health fairs
|
| gptkbp:promotes |
research funding
awareness of Ehlers-Danlos syndrome |
| gptkbp:provides |
emotional support
community support resources for healthcare providers support for patients advocacy training information on genetic testing information on treatment options information on lifestyle management |
| gptkbp:publishes |
research articles
|
| gptkbp:supports |
clinical trials
patient-led initiatives |
| gptkbp:works_with |
research institutions
|