Statements (60)
| Predicate | Object |
|---|---|
| gptkbp:instance_of |
gptkb:non-profit_organization
|
| gptkbp:bfsLayer |
5
|
| gptkbp:bfsParent |
gptkb:VHL
|
| gptkbp:advocates_for |
research funding
|
| gptkbp:aims_to |
increase awareness of VHL
|
| gptkbp:annual_event |
to raise funds
|
| gptkbp:collaborated_with |
other health organizations
academic researchers |
| gptkbp:collaborates_with |
research institutions
|
| gptkbp:conducts |
surveys of patient needs
|
| gptkbp:connects |
patients and families
|
| gptkbp:dedicated_to |
improving patient outcomes
|
| gptkbp:develops |
community resources
|
| gptkbp:encourages |
patient participation in research
early diagnosis of VHL |
| gptkbp:focuses_on |
gptkb:Von_Hippel-Lindau_disease
patient empowerment |
| gptkbp:founded |
gptkb:2003
|
| gptkbp:has_member |
around the world
|
| gptkbp:has_mission |
improve quality of life for VHL patients
|
| gptkbp:has_part |
patient support groups
|
| gptkbp:has_programs |
youth and families
VHL awareness campaigns |
| gptkbp:has_website |
www.vhl.org
|
| gptkbp:headquartered_in |
gptkb:United_States
|
| gptkbp:hosts |
patient conferences
|
| https://www.w3.org/2000/01/rdf-schema#label |
VHL Alliance
|
| gptkbp:is_a |
gptkb:non-profit_organization
patient advocacy organization |
| gptkbp:is_active_in |
social media
|
| gptkbp:is_engaged_in |
public health initiatives
|
| gptkbp:is_involved_in |
advocacy efforts
community outreach programs policy advocacy clinical research partnerships |
| gptkbp:is_part_of |
global VHL community
|
| gptkbp:is_recognized_by |
medical community
|
| gptkbp:is_supported_by |
grants
donations |
| gptkbp:offers |
gptkb:Educational_Institution
mental health resources webinars scholarships for students online support forums |
| gptkbp:organizes |
gptkb:charity
|
| gptkbp:partnership |
pharmaceutical companies
|
| gptkbp:promotes |
genetic testing
|
| gptkbp:provides |
support for patients
resources for caregivers information on treatment options updates on research advancements guidance for genetic counseling information on VHL symptoms |
| gptkbp:provides_information_on |
clinical trials
|
| gptkbp:public_awareness |
VHL disease
|
| gptkbp:publishes |
newsletters
|
| gptkbp:supports |
VHL research initiatives
|
| gptkbp:volunteer_opportunities |
assist with events
|
| gptkbp:works_to |
eliminate barriers to care
|
| gptkbp:works_with |
gptkb:hospital
|