National Spina Bifida Patient Registry
GPTKB entity
Statements (56)
| Predicate | Object |
|---|---|
| gptkbp:instance_of |
gptkb:archaeological_site
|
| gptkbp:bfsLayer |
4
|
| gptkbp:bfsParent |
gptkb:spina_bifida
|
| gptkbp:aims_to |
enhance quality of life
improve health outcomes enhance data quality reduce disparities in care |
| gptkbp:collaborates_with |
healthcare providers
|
| gptkbp:collaborations |
gptkb:military_unit
gptkb:collaboration multi-state initiative |
| gptkbp:collection |
demographics
clinical outcomes treatment patterns |
| gptkbp:contributed_to |
policy development
|
| gptkbp:encourages |
participation in research studies
|
| gptkbp:established |
gptkb:Centers_for_Disease_Control_and_Prevention
|
| gptkbp:facilitates |
collaboration among stakeholders
|
| gptkbp:focuses_on |
gptkb:spina_bifida
lifetime care |
| https://www.w3.org/2000/01/rdf-schema#label |
National Spina Bifida Patient Registry
|
| gptkbp:includes |
multiple data sources
|
| gptkbp:is_accessible_by |
gptkb:hospital
gptkb:physicist patients |
| gptkbp:is_designed_to |
track health trends
|
| gptkbp:is_evaluated_by |
effectiveness
external reviewers |
| gptkbp:is_informed_by |
gptkb:municipality
patient feedback latest research findings |
| gptkbp:is_linked_to |
other health registries
|
| gptkbp:is_monitored_by |
gptkb:CDC
|
| gptkbp:is_part_of |
national health strategy
national health databases National Center on Birth Defects and Developmental Disabilities national surveillance efforts |
| gptkbp:is_promoted_by |
social media campaigns
advocacy groups |
| gptkbp:is_supported_by |
non-profit organizations
community outreach programs grants from NIH |
| gptkbp:is_used_for |
quality improvement initiatives
|
| gptkbp:is_utilized_in |
policy makers
grant applications |
| gptkbp:operates_in |
gptkb:United_States
|
| gptkbp:promotes |
awareness of spina bifida
|
| gptkbp:provides |
data for epidemiological studies
training for data collectors information for research |
| gptkbp:provides_access_to |
longitudinal data
|
| gptkbp:purpose |
collect data on individuals with spina bifida
|
| gptkbp:receives_funding_from |
federal grants
|
| gptkbp:supports |
public health initiatives
|
| gptkbp:updates |
regularly
|
| gptkbp:utilizes |
patient-reported outcomes
|