National Organization for Rare Disorders
GPTKB entity
Properties (69)
| Predicate | Object |
|---|---|
| gptkbp:instanceOf |
gptkb:non-profit_organization
|
| gptkbp:advocatesFor |
policy changes
|
| gptkbp:collaborates_with |
patient advocacy groups
|
| gptkbp:conducts |
advocacy campaigns
|
| gptkbp:focus |
rare diseases
|
| gptkbp:founded |
1983
|
| gptkbp:funding |
research projects
|
| gptkbp:has_a |
volunteers
|
| gptkbp:has_a_focus_on |
community engagement
data collection patient safety patient-centered care research funding collaborative research health equity improving patient outcomes patient empowerment improving healthcare delivery advocacy for treatment access healthcare_access |
| gptkbp:has_a_role_in |
policy advocacy
|
| gptkbp:has_a_website |
rarediseases.org
|
| gptkbp:has_partnerships_with |
pharmaceutical companies
|
| gptkbp:hasPrograms |
rare disease awareness
|
| gptkbp:headquarters |
gptkb:Danbury,_Connecticut
|
| gptkbp:hosts |
annual conferences
|
| https://www.w3.org/2000/01/rdf-schema#label |
National Organization for Rare Disorders
|
| gptkbp:is_a_member_of |
gptkb:National_Health_Council
the_Rare_Disease_Legislative_Advocates |
| gptkbp:is_a_resource_for |
medical professionals
|
| gptkbp:is_a_source_of |
clinical guidelines
grants for research information on clinical trials information for policymakers information for patients and families information on rare diseases |
| gptkbp:is_involved_in |
clinical trials
community outreach patient registries public health initiatives fundraising efforts international collaborations legislative initiatives healthcare_policy_discussions healthcare_reform_discussions |
| gptkbp:is_recognized_for |
gptkb:the_U.S._government
|
| gptkbp:leadership |
patient advocacy efforts
rare disease advocacy |
| gptkbp:mission |
to advocate for patients with rare diseases
|
| gptkbp:offers |
educational programs
support groups mentorship programs webinars financial assistance programs |
| gptkbp:offersPrograms |
NORD_Rare_Disease_Database
|
| gptkbp:promotes |
rare disease issues
|
| gptkbp:provides |
educational materials
networking opportunities resources for researchers technical assistance advocacy training patient education resources families of patients information and resources information on healthcare policies support for rare disease organizations |
| gptkbp:publishes |
newsletters
|
| gptkbp:supports |
research initiatives
|
| gptkbp:works_with |
healthcare_professionals
|