National Organization for Rare Disorders

GPTKB entity

Statements (35)
Predicate Object
gptkbp:instance_of gptkb:non-profit_organization
gptkbp:advocates_for policy changes
gptkbp:affiliated_with gptkb:National_Institutes_of_Health
gptkbp:collaborates_with gptkb:healthcare_professionals
gptkbp:conducts surveys
gptkbp:engages_in gptkb:public_outreach
gptkbp:focus rare diseases
gptkbp:founded gptkb:1983
gptkbp:governed_by gptkb:Board_of_Directors
gptkbp:has_members patient advocacy groups
gptkbp:has_mission improve the lives of individuals with rare diseases
gptkbp:has_partnerships_with biopharmaceutical companies
gptkbp:headquarters gptkb:Danbury,_Connecticut
gptkbp:hosts conferences
https://www.w3.org/2000/01/rdf-schema#label National Organization for Rare Disorders
gptkbp:is_a_member_of Rare Disease International
gptkbp:is_involved_in legislative advocacy
gptkbp:is_recognized_by gptkb:the_U._S._government
gptkbp:offers grants
educational webinars
gptkbp:promotes awareness of rare diseases
gptkbp:provides resources for researchers
information resources
gptkbp:provides_support_for clinical trials
gptkbp:publishes newsletters
gptkbp:receives_funding_from donations
gptkbp:services gptkb:education
research funding
advocacy
gptkbp:staff professionals
gptkbp:supports patient organizations
gptkbp:vision a world where all individuals with rare diseases are diagnosed and treated.
gptkbp:website rarediseases.org
gptkbp:bfsParent gptkb:the_March_of_Dimes_Foundation
gptkbp:bfsLayer 5