National ALS Registry

GPTKB entity

Statements (62)
Predicate Object
gptkbp:instance_of gptkb:Apache_Hive
gptkbp:aims_to_improve early diagnosis of ALS
understanding of ALS
gptkbp:collaborates_with research institutions
gptkbp:collection surveys
gptkbp:encourages patient participation
gptkbp:established_in gptkb:Centers_for_Disease_Control_and_Prevention_(CDC)
gptkbp:facilitates clinical trials
gptkbp:has_impact_on ALS treatment development
gptkbp:has_part gptkb:Git_Hub
https://www.w3.org/2000/01/rdf-schema#label National ALS Registry
gptkbp:includes clinical data
demographic data
geographic data
environmental exposure data
gptkbp:is_accessible_by gptkb:Web
gptkb:researchers
gptkbp:is_collaborative_with universities
healthcare providers
patient advocacy organizations
gptkbp:is_connected_to ALS research networks
gptkbp:is_engaged_in community outreach
data sharing
gptkbp:is_evaluated_by gptkb:scientific_community
effectiveness
gptkbp:is_focused_on improving patient outcomes
gptkbp:is_funded_by gptkb:federal_government
gptkbp:is_informed_by patient feedback
latest ALS research
gptkbp:is_involved_in ALS awareness campaigns
gptkbp:is_linked_to ALS clinical guidelines
gptkbp:is_monitored_by gptkb:CDC
gptkbp:is_part_of public health strategy
national ALS strategy
national health surveillance system
National Institute of Neurological Disorders and Stroke (NINDS)
gptkbp:is_promoted_by ALS advocacy groups
gptkbp:is_promoted_through social media campaigns
gptkbp:is_recognized_by gptkb:healthcare_professionals
gptkbp:is_related_to motor neuron diseases
gptkbp:is_subject_to privacy regulations
gptkbp:is_supported_by grants
non-profit organizations
federal funding
gptkbp:is_updated_by gptkb:annually
gptkbp:is_used_for policy making
gptkbp:is_used_to identify risk factors for ALS
track ALS incidence
gptkbp:is_utilized_for epidemiological studies
healthcare policy research
gptkbp:launched gptkb:2010
gptkbp:open_to_public data reports
gptkbp:promotes awareness of ALS
gptkbp:provides resources for families affected by ALS
information on ALS research
gptkbp:provides_access_to ALS patients and caregivers
gptkbp:purpose collect data on amyotrophic lateral sclerosis (ALS)
gptkbp:supports public health initiatives
gptkbp:target_audience individuals diagnosed with ALS
gptkbp:utilizes data analytics
gptkbp:bfsParent gptkb:The_ALS_Association
gptkbp:bfsLayer 5