Cystic Fibrosis Foundation Patient Registry

GPTKB entity

Statements (20)
Predicate Object
gptkbp:instanceOf gptkb:medical_registry
gptkbp:country gptkb:United_States
gptkbp:dataCollected gptkb:census
microbiology
nutrition
clinical outcomes
treatments
hospitalizations
lung function
gptkbp:established 1966
gptkbp:maintainedBy gptkb:Cystic_Fibrosis_Foundation
gptkbp:purpose track health outcomes of people with cystic fibrosis
gptkbp:usedFor gptkb:research
epidemiological studies
quality improvement
clinical care
gptkbp:website https://www.cff.org/researchers/cf-foundation-patient-registry
gptkbp:bfsParent gptkb:Cystic_Fibrosis_Foundation
gptkbp:bfsLayer 5
https://www.w3.org/2000/01/rdf-schema#label Cystic Fibrosis Foundation Patient Registry