National Fanconi Anemia Registry

GPTKB entity

Statements (56)
Predicate Object
gptkbp:instance_of gptkb:archaeological_site
gptkbp:bfsLayer 5
gptkbp:bfsParent gptkb:Fanconi_anemia_type_A
gptkbp:aims_to gptkb:collaboration
clinical trials
improve patient outcomes
gptkbp:collaborated_with universities
hospitals
gptkbp:collaborates_with research institutions
gptkbp:collection patient demographics
genetic information
treatment responses
gptkbp:established gptkb:2000
gptkbp:focuses_on gptkb:Fanconi_Anemia
gptkbp:has_impact_on treatment guidelines
gptkbp:has_part patient registry
data collection system
https://www.w3.org/2000/01/rdf-schema#label National Fanconi Anemia Registry
gptkbp:is_a_resource_for gptkb:education
gptkbp:is_accessible_by gptkb:physicist
patients
clinicians
gptkbp:is_informed_by patient feedback
gptkbp:is_involved_in gptkb:charity
patient education
community outreach
data sharing
networking events
patient registries
policy advocacy
research funding
awareness campaigns
genetic counseling
biobanking
gptkbp:is_part_of gptkb:Fanconi_Anemia_community
global research efforts
gptkbp:is_promoted_by social media
workshops
conferences
gptkbp:is_recognized_by medical community
gptkbp:is_supported_by donations
foundations
gptkbp:is_utilized_in healthcare providers
gptkbp:location gptkb:United_States
gptkbp:managed_by gptkb:Fanconi_Anemia_Research_Fund
gptkbp:notable_work gptkb:academic_journal
gptkbp:participated_in families
gptkbp:provides_information_on clinical trials
clinical studies
gptkbp:receives_funding_from grants
gptkbp:supports research projects
patient advocacy groups
gptkbp:technology data management
gptkbp:track long-term health outcomes
gptkbp:type medical research registry
gptkbp:updates data