|
gptkbp:instance_of
|
gptkb:Apache_Hive
|
|
gptkbp:aims_to
|
improve patient outcomes
|
|
gptkbp:aims_to_improve
|
gptkb:collaboration
clinical trials
|
|
gptkbp:collaborates_with
|
research institutions
|
|
gptkbp:collection
|
patient demographics
genetic information
treatment responses
|
|
gptkbp:established_in
|
gptkb:2000
|
|
gptkbp:focuses_on
|
gptkb:Fanconi_Anemia
|
|
gptkbp:has_collaborations_with
|
universities
hospitals
|
|
gptkbp:has_impact_on
|
treatment guidelines
|
|
gptkbp:has_part
|
patient registry
data collection system
|
|
https://www.w3.org/2000/01/rdf-schema#label
|
National Fanconi Anemia Registry
|
|
gptkbp:is_a_resource_for
|
gptkb:education
|
|
gptkbp:is_accessible_by
|
gptkb:researchers
patients
clinicians
|
|
gptkbp:is_funded_by
|
grants
|
|
gptkbp:is_informed_by
|
patient feedback
|
|
gptkbp:is_involved_in
|
gptkb:fundraising_events
patient education
community outreach
data sharing
networking events
patient registries
policy advocacy
research funding
awareness campaigns
genetic counseling
biobanking
|
|
gptkbp:is_managed_by
|
gptkb:Fanconi_Anemia_Research_Fund
|
|
gptkbp:is_part_of
|
gptkb:Fanconi_Anemia_community
global research efforts
|
|
gptkbp:is_promoted_through
|
social media
workshops
conferences
|
|
gptkbp:is_recognized_by
|
medical community
|
|
gptkbp:is_supported_by
|
donations
foundations
|
|
gptkbp:is_updated_by
|
data
|
|
gptkbp:is_utilized_by
|
healthcare providers
|
|
gptkbp:location
|
gptkb:United_States
|
|
gptkbp:notable_work
|
gptkb:academic_journals
|
|
gptkbp:participated_in
|
families
|
|
gptkbp:provides_information_on
|
clinical trials
clinical studies
|
|
gptkbp:provides_support_for
|
research projects
|
|
gptkbp:supports
|
patient advocacy groups
|
|
gptkbp:track
|
long-term health outcomes
|
|
gptkbp:type
|
medical research registry
|
|
gptkbp:uses_technology
|
data management
|
|
gptkbp:bfsParent
|
gptkb:Fanconi_anemia_type_A
|
|
gptkbp:bfsLayer
|
7
|